The Ultimate List of Cancer Registry Resources for 2021
Suzanne Neve, RHIA, CTR - Director, Cancer Registry Cancer Registry 1 Comment
Working in cancer registry is a tough job. Most hospitals see a diverse patient population. A registrar needs to accurately summarize each cancer patient’s history, diagnosis, treatment, and health status while following mandated guidelines. This requires analyzing and synthesizing information from many different resources.
Registrars provide critical data that is used in the management of cancer. This data provides essential information to researchers, healthcare providers, and public health officials as they develop and track cancer treatments, conduct research, and improve cancer prevention and screening programs.
To help registrars with this work, MRA put together an ultimate list of resources that you can rely on.
Reportability Requirements
SEER Program Coding and Staging Manual 2018, Introduction and General Instructions
SEER collects and publishes cancer incidence and survival data from population-based cancer registries covering approximately 34 percent of the U.S. population. These registries routinely collect data on patient demographics, primary tumor site, tumor morphology and stage at diagnosis, first course of treatment, and follow-up for vital status (survival). These data are collected on every cancer case reported from 19 U.S. geographic areas.
Casefinding (Case Ascertainment)
Casefinding ICD-9-CM or ICD-10 code list
Use the casefinding lists to screen prospective cases and identify cancer cases for inclusion in the registry. A casefinding list is not the same as a reportable list. Casefinding lists are intended for searching a variety of cases so as not to miss any reportable cases.
Definition of Casefinding (case ascertainment): Process of identifying all reportable cases through review of source documents and case listings. Casefinding covers a range of cases that need to be assessed to determine whether or not they are reportable.
It is used by cancer registries throughout the world to record incidence of malignancy and survival rates, and the data produced are used to inform cancer control, research activity, treatment planning and health economics.
Software
Registry Plus™ Software Programs for Cancer Registries
While there are many different software vendors, one helpful resource is Registry Plus, which is a suite of publicly available free software programs for collecting and processing cancer registry data. The Registry Plus suite can be used separately or together for routine or special data collection. These software programs, compliant with national standards, are made available by CDC to implement the National Program of Cancer Registries, established by Public Law 102-515.
Abstracting and Coding
Standards for Oncology Registry Entry (STORE)
Historical Staging and Coding Manuals
SEER*Rx - Interactive Antineoplastic Drugs Database
Data Standards & Data Dictionary
CoC Cancer Program Accreditation
Cancer Reporting Protocols and Guidelines (CAP)
Rapid Quality Reporting System (RQRS)
National Cancer Database (NCDB) Data Submission
National Accreditation Program for Breasts Centers (NAPBC)
Helpful Links
Directory of all active National Provider Identifier (NPI) records
NCCN Clinical Practice Guidelines in Oncology
Translating Diagnostic Terms for Tumors
Questions and Answers
Data Collection Answers from the CoC, NPCR, SEER Technical Workgroup
Training
Collaborative Stage Education Resources
National Cancer Registrars Association Education
American College of Surgeons Cancer Programs
National Program of Cancer Registries (NPCR)
State Resources
Alabama – Hospital Resources and Casefinding Code List
Alaska – Cancer Registry
Arizona – Cancer Registry Coding Handbook
Arkansas – Cancer Registry Rules and Resources
California – Registrar Resources and Reporting
Colorado – Central Cancer Registry
Connecticut – Resources for Registrars
Delaware - Hospital Reporting Procedure Manual
District of Columbia – Cancer Registry
Florida – Resources for Registrars
Georgia - Policy and Procedure Manual for Reporting Facilities July 2017
Hawaii – Tumor Registry
Idaho - Reporting Laws & Rules
Illinois – Cancer Registry
Indiana – Policy and Procedure Manuals
Kansas – Cancer Registry Coding and Information Manual
Kentucky - 2018 Abstractor's Manual and Registrars Wiki
Louisiana – Hospital Reporting Resources
Maine – Hospital Reporting Resources
Maryland - Resources
Massachusetts - Abstracting and Coding Manual, 5th edition
Michigan - Cancer Program Manual
Minnesota – Cancer Registry Reporting Requirements
Mississippi - Cancer Registry Reporting Manual Revised 2016
Missouri – Abstracting and Reporting Resources
Montana - Central Tumor Registry Reporting Manuals (Software Users & Paper)
Nebraska – Cancer Registry Brochure
Nevada – Reporting & Analyzing Information for Cancer and Nevada Cancer Reporting Interactive Course
New Hampshire – Information for Registrars
New Jersey – Program Manual Instructions for Health Care Facilities 2018
New Mexico – Cancer Reporting Requirements
New York - Facility Reporting Manual
North Carolina – Cancer Registry Reporting Requirements
North Dakota – Reportable Conditions and Administrative Rules
Ohio - Web Plus Manual for Hospital Abstracting
Oklahoma – Cancer Registry Coding Manual
Oregon - Cancer Reporting Standards and Forms
Pennsylvania – Cancer Registry Reporting Requirements
Rhode Island – Cancer Registry
South Carolina – Cancer Registry Regulations & Legislation
South Dakota – Cancer Registry Reporting
Tennessee – Standards for Reporting
Texas – Cancer Reporting Guidelines
Utah - How to Report a Cancer Case in Utah
Vermont – Reporting Requirements and Hospital Procedures
Virginia – 2016 User Manual
Washington – State Cancer Registry Administrative Code & Reporting Requirements
West Virginia - Cancer Registry Procedure Manual 2017 Facility-Based Registry Edition
Wisconsin - Cancer Reporting System (WCRS) Reporting Announcements
Wyoming - Cancer Surveillance Program Reporting Manual
Do you have any resources that you rely on but isn’t on this list? Put a link in the comments below.
In addition, partnering with a third-party like MRA can help you eliminate backlogs and reduce expenses. If you are ready to continue the conversation, contact MRA today.
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