Working in cancer registry is a tough job. Most hospitals see a diverse patient population. A registrar needs to accurately summarize each cancer patient’s history, diagnosis, treatment, and health status while following mandated guidelines. This requires analyzing and synthesizing information from many different resources.
Registrars provide critical data that is used in the management of cancer. This data provides essential information to researchers, healthcare providers, and public health officials as they develop and track cancer treatments, conduct research, and improve cancer prevention and screening programs.
To help registrars with this work, MRA put together an ultimate list of resources that you can rely on.
SEER collects and publishes cancer incidence and survival data from population-based cancer registries covering approximately 34 percent of the U.S. population. These registries routinely collect data on patient demographics, primary tumor site, tumor morphology and stage at diagnosis, first course of treatment, and follow-up for vital status (survival). These data are collected on every cancer case reported from 19 U.S. geographic areas.
Casefinding (Case Ascertainment)
Use the casefinding lists to screen prospective cases and identify cancer cases for inclusion in the registry. A casefinding list is not the same as a reportable list. Casefinding lists are intended for searching a variety of cases so as not to miss any reportable cases.
Definition of Casefinding (case ascertainment): Process of identifying all reportable cases through review of source documents and case listings. Casefinding covers a range of cases that need to be assessed to determine whether or not they are reportable.
It is used by cancer registries throughout the world to record incidence of malignancy and survival rates, and the data produced are used to inform cancer control, research activity, treatment planning and health economics.
While there are many different software vendors, one helpful resource is Registry Plus, which is a suite of publicly available free software programs for collecting and processing cancer registry data. The Registry Plus suite can be used separately or together for routine or special data collection. These software programs, compliant with national standards, are made available by CDC to implement the National Program of Cancer Registries, established by Public Law 102-515.
Abstracting and Coding
CoC Cancer Program Accreditation
Questions and Answers
Alaska – Cancer Registry
Arizona – Cancer Registry Coding Handbook
Arkansas – Cancer Registry Rules and Resources
California – Registrar Resources and Reporting
Colorado – Central Cancer Registry
Connecticut – Resources for Registrars
Delaware - Hospital Reporting Procedure Manual
District of Columbia – Cancer Registry
Florida – Resources for Registrars
Hawaii – Tumor Registry
Idaho - Reporting Laws & Rules
Illinois – Cancer Registry
Indiana – Policy and Procedure Manuals
Louisiana – Hospital Reporting Resources
Maine – Hospital Reporting Resources
Maryland - Resources
Massachusetts - Abstracting and Coding Manual, 5th edition
Michigan - Cancer Program Manual
Minnesota – Cancer Registry Reporting Requirements
Mississippi - Cancer Registry Reporting Manual Revised 2016
Missouri – Abstracting and Reporting Resources
Montana - Central Tumor Registry Site
Nebraska – Cancer Registry Brochure
New Hampshire – Information for Registrars
New Mexico – Cancer Reporting Requirements
New York - Facility Reporting Manual
North Carolina – Cancer Registry Reporting Requirements
Oklahoma – Cancer Registry Coding Manual
Oregon - Cancer Reporting Standards and Forms
Pennsylvania – Cancer Registry Reporting Requirements
Rhode Island – Cancer Registry
South Carolina – Cancer Registry Regulations & Legislation
South Dakota – Cancer Registry Reporting
Tennessee – Standards for Reporting
Texas – Cancer Reporting Guidelines
Virginia – 2016 User Manual
Do you have any resources that you rely on but isn’t on this list? Put a link in the comments below.
In addition, partnering with a third-party like MRA can help you eliminate backlogs and reduce expenses. If you are ready to continue the conversation, contact MRA today.
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