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Handy List of Resources on the Web

Most cancer registrars, at one time or another, go through volumes of books to do cancer reporting.  The cancer registry standard setters provide a repository of books on abstracting,   coding instructions and guidelines with titles spanning the entire alphabet.  For example, do you remember lugging around books for AJCC, CS, DAM, FORDS, ICD-O, MPH, ROADS, NAACCR, SEER, etcetera?

These days, registrars still rely on a large number of references and resources to do

Elizabeth Patena, M.D., CTRVP of Cancer Registry

Elizabeth Patena, M.D., CTR VP of Cancer Registry

their job.  However, through technology, most items are contained within PC-based abstracting software or available on the Web.

Web-Based Wins

There are benefits to web-based formats over PC-based software.  While PC-based software pulls everything together in one place for registrars, web-based resources save time, money and IT headaches. Here’s how.

  • Updates are automatic: users do not have to install anything to access the latest revisions.
  • Allows access from any computer or device with an Internet connection; best choice for traveling registrars or consultants.
  • Eliminates the need for IT assistance, logins and passwords for installing software on work computers.

Each standard setter has their own dedicated webpage with links and easy access to a myriad of resources. But navigating websites and finding resources is sometimes confusing and time-consuming.

So to help registrars, I’ve compiled a list of the best direct links. Whether you are a seasoned registrar or just starting in the field, keep this list handy. And happy surfing!

CANCER REGISTRY RESOURCES

REPORTABILITY REQUIREMENTS

Massachusetts Abstracting and Coding Manual, 5th edition, Section II
http://www.mass.gov/eohhs/gov/departments/dph/programs/health-stats/cancer-registry/coding-manual/

SEER Program Coding and Staging Manual 2013, Introduction and General Instructions
http://seer.cancer.gov/tools/codingmanuals/index.html

CASEFINDING (CASE ASCERTAINEMENT)

Casefinding ICD-9-CM or ICD-10 code list
http://seer.cancer.gov/tools/casefinding/

ICD-CM Conversion
http://seer.cancer.gov/tools/conversion/

International Classification of Diseases for Oncology (ICD-O-3) – hard copy


ABSTRACTING AND CODING
Massachusetts Abstracting and Coding Manual, 5th edition
http://www.mass.gov/eohhs/gov/departments/dph/programs/health-stats/cancer-registry/coding-manual/

Facility Oncology Registry Data Standards (FORDS)
http://www.facs.org/cancer/coc/fords/fords-manual-2013.pdf

Multiple Primary and Histology Rules
http://seer.cancer.gov/tools/mphrules/

Hematopoietics
http://seer.cancer.gov/tools/heme/

Collaborative Staging
https://cancerstaging.org/cstage/Pages/default.aspx

AJCC Staging Manual – hard copy
Summary Staging Manual – hard copy

Interactive antineoplastic drugs database
http://seer.cancer.gov/tools/seerrx/


EDITS
http://www.naaccr.org/StandardsandRegistryOperations/VolumeII.aspx

Chapter X: Data Dictionary data items are presented in alphabetical order by item names. For each item, a general description, specific codes and definitions are provided. For many items, the document provides a brief rationale for collecting the data item or for using the codes listed.


CoC CANCER PROGRAM ACCREDITATION
Cancer Program and Data Standards
http://www.facs.org/cancer/coc/standards.html

Cancer Protocols (CAP)
http://www.cap.org/apps/cap.portaL?_nfpb=true&cntvwrPtlt_actionOverride=%2Fportlets%2FcontentViewer%2Fshow&_windowLabel=cntvwrPtlt&cntvwrPtlt%7BactionForm.contentReference%7D=committees%2Fcancer%2Fcancer_protocols%2Fprotocols_index.html&_state=maximized&_pageLabel=cntvwr

Rapid Quality Reporting System (RQRS)
http://www.facs.org/cancer/ncdb/rqrs.html

Best Practices Repository (BPR) – Best practices to assist you in meeting the standards.
https://www.socialtext.net/cancer_standards/coc_best_practices_repository


NATIONAL CANCER DATABASE (NCDB) DATA SUBMISSION
http://www.facs.org/cancer/ncdb/datasubmission.html


NATIONAL ACCREDITATION PROGRAM FOR BREASTS CENTERS (NAPBC)Program standards and components
http://napbc-breast.org/standards/standards.html


QUESTIONS AND ANSWERSSEER Inquiry (SINQ)
http://seer.cancer.gov/seerinquiry/index.php

Ask a SEER Registrar
http://seer.cancer.gov/registrars/contact.html

Data Collection Q&A
http://seer.cancer.gov/registrars/data-collection.html

CAnswer Forum
http://cancerbulletin.facs.org/forums


TRAINING
http://seer.cancer.gov/training/
https://cancerstaging.org/cstage/education/Pages/Education.aspx
http://www.naaccr.org/EducationandTraining/ResourcesandTrainingforCTRs.aspx

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